My Psychiatrist prescribed me sleeping pills recently to try and help with my very disruptive sleep patterns.
I don’t take them every night but the first couple of times I did take them I actually slept like 7 hours…in a row!!
But with any of my past experiences taking sleep meds, usually after about 3 days or so, I seem to become immune to them and history repeats itself and eventually they just stop working.
So my Psychiatrist suggested that maybe I alternate between 2 different kinds to try and avoid building up an immunity to one particular brand.
The secondary pill he prescribed is pretty new on the market and came with a bit more risk to me when it comes to its long laundry list of potential side effects. Something I have to be very vigilant of given my history with most medications I take.
I tried taking them once or twice a couple of weeks ago and found that it made me extremely groggy and unfunctionable the next day. I decided to just save them for nights where I really feel I need one.
Last night felt like one of those nights that warranted me taking one. I was having a bad night and feeling super anxious and emotional. I also hadn’t slept the night before because I have been experiencing severe pain throughout my entire body the last few days which I believe to be a side effect from the recent increase in my anti-anxiety medication and I was almost too afraid to fall asleep.
So Rich gave me the sleeping pill about 10pm. An hour or so later I could feel myself slowly drifting off to sleep, or so I thought.
My eyes were closed but then suddenly my arms and legs felt very tingly, I felt very weighted down under my weighted blanket, I kept trying to move but couldn’t and then my body went almost numb.
I felt paralyzed and for the next hour and a half I began hallucinating and became extremely paranoid.
I remember all of it. Every noise I heard and every image I saw including the one of a gun pointing directly in my face.
My body may have felt very disconnected but my mind was still very much aware of my surroundings. I was completely conscious yet felt helpless against the danger I kept feeling I was in.
It was terrifying.
Our brains can have a very cruel sense of humour sometimes. My body is so damn sensitive to drugs of any kind and that’s no joke. It’s really making me reconsider my decision to begin Ketamine treatment next week even more.
I could hear myself trying to speak aloud at times but the words weren’t always coming out of my mouth. I couldn’t catch my breath. I kept trying to take deep breaths but I was gasping for air each time I did. Those desperate and very loud gasps for air was what brought Hannah anxiously running down the hall from behind her closed bedroom door to see what was going on.
One minute I’d be hysterically crying and the next moment I was hysterically laughing.
Maggie kept trying to lick my face. Her tongue felt like it was on speed. She could sense that there was something wrong.
Rich held my hand the entire time trying desperately to calm me down while at the same time laughing hysterically alongside Hannah at some of the nonsensical and I gather from their outbursts of laughter, very comical things that I kept saying.
Laughter was all that was holding them together. I guess that’s why they say it truly is the best medicine.
**If you missed my blog yesterday about my upcoming Ketamine treatment please go to: https://youareenough712.wordpress.com/2021/10/05/ketamine-again/
Before I sat down to write this today I was planning on doing another Vlog. (Note: I actually wrote this and intended to post it yesterday before I found out that Facebook and Instagram had both crashed!). I thought I needed to maybe hear my own voice again today but I’m just too vulnerable right now and so I wrote my words out instead.
My Psychiatrist increased my new medication again late last week with the intent to get it to a therapeutic dose soon. It’s an anti-anxiety medication which I mentioned I would be starting a few weeks ago. As of yet I can’t say that it’s really been helping me. So for now I will just add it to the long list of failures.
Yesterday was a pretty bad day all around for me. My anxiety was very high which then turned to panic, crying, rumination and an increased amount of thoughts of death and dying.
As I also mentioned recently my Psychiatrist had put a plan together for me when we spoke a few weeks ago. It included this new anti-anxiety medication and it also included treatment for Ketamine…AGAIN which has been scheduled to start early next week.
So for those of you who don’t know what Ketamine is I will give you a quick explanation here. For starters, it’s actually a very potent and sometimes deadly street drug known as “Special K”. It is also apparently used as a horse tranquilizer but most commonly it is found in anesthetic.
I’m not gonna bore you or put you through a science class today but people living with Depression are known to have “abnormal brain plasticity”. Continued studies and research have shown that using Ketamine can help to remove the “negative receptors” in our brain and then it like “plants a seed” in your brain which allows for new “neuropathways” and positive neuroactivity to grow and flourish.
Studies have shown that by using Ketamine to treat Depression there has been a 60% success rate so far and unlike anti-depressants it is supposed to work faster and more effectively.
Now let me go back for a second here and explain (for those who may not already know) what I meant before when I said I am scheduled to begin Ketamine treatment…AGAIN.
Several years ago during an inpatient stay at Sunnybrook Hospital I was asked to take part in a Clinical Trial for Ketamine. I had never heard of it before but I was the perfect candidate though because it is used mostly on patients who suffer with Treatment Resistant Depression like I do. I happily and very naively agreed to try it. I figured I had nothing else to do seeing as I was in the hospital anyways.
I filled out a ton of paperwork, spoke in depth and several times with the Psychiatrist in charge of the study. I filled out many questionnaires with his Associates. After I was given approval to begin the study I was scheduled to start the 1st of 6 treatments the very next day.
They told me during the initial consult that the Ketamine would be administered through an IV and that I would have to lay there in the OR attached to an IV drip for 45 minutes and then kept for observation for another 30 minutes following. Before we began the process I asked the Anesthesiologist if I would feel anything. He said you may feel a bit woozy.
Well woozy was an understatement because for the next 45 minutes I lay on the cold table hallucinating, feeling disassociation and seeing psychedelic images flash before my eyes. It felt like a complete out of body experience with flashbacks as far back as my childhood.
I hated every bloody second of it and couldn’t wait for it to be over. The next day I met with the Psychiatrist to discuss how it went and we both agreed it was probably best that I don’t continue with the study. Another epic fail.
Now let’s fast forward to March of 2020. My current Psychiatrist happens to be the Medical Director of 2 Ketamine clinics in the GTA and has studied it’s effectiveness on Treatment Resistant Depression for several years now.
Back in February or March of 2020 (everything is kinda a blur now) we began another discussion surrounding Ketamine and he asked me if I would be willing to try it again as with more scientific research and studies conducted it was now available in a nose spray form. And less invasive.
He told me he would administer the 1st dose in his downtown office at the hospital he works out of to ensure I tolerate it and that the following 5 doses could be picked up at a local compounding pharmacy and be administered under the supervision of my husband in the comfort of my own home.
I agreed to try it AGAIN cause well, I try almost everything at least once when it’s come to my treatment or in this case twice.
We were scheduled to begin the 1st treatment on March 15th 2020 at 6:00 p.m. It never happened. And if you have been following my journey very recently I kinda just let things slide from there once the pandemic hit.
As most of you know though I reconnected with my Psychiatrist a few weeks ago at which time he told me that patients were no longer allowed to administer the nose spray at home. The whole idea had been kiboshed over the past year as research had shown that it was a liability and quite dangerous to do so. But I guess it’s OK because since March of 2020 Ketamine is now available in an even less invasive form, a pill which is dissolvable under the tongue but still can only be administered under the watchful eye of a doctor/nurse.
So I guess as they say, three times a charm as I have agreed to try it…AGAIN. The six sessions are to be completed at a clinic in Toronto (there is also a clinic in Mississauga too). Each session will take between 2 to 3 hours from start to finish to complete and I am not allowed to drive home afterwards. They actually recommend you don’t drive for 24 hours following. The sessions will take place twice a week for two weeks and once a week after that.
Although I’ve agreed to try it again given I feel like I’m running out of both viable options and steam, but I have been told by my doctor that I am very likely to still feel those same hallucinations and disassociative feelings that I don’t like. I’ve done many other treatments and have tried many hallucinogens over the last several years. I don’t like feeling as though I’m tripping out on LSD.
I’ve been consumed with very negative thoughts for several days now (surprise, surprise) since booking my treatment. I’m experiencing extreme anxiety and feelings of overwhelming guilt and lets not forget those feelings of being a burden that weigh me down too. I’m questioning my decision to do this again for many, like OH MY GOSH, too many reasons.
For one, it’s still very new and likely not to be a forever cure from what the current research shows. I will very likely need to continue on some type of maintenance program after the six sessions are done. But like how long term? And does anyone even know what the long term effects of it could be, especially cognitively. As it is, I did ECT (Electroconvulsive Treatment) several years back. Probably the most invasive and scariest treatment I’ve done. The eight treatments I did fucked me up royally. It fried my short term memory, my ability to recall many things and I find myself often forgetting what I was talking about mid…sentence.
But at the same time Psychedelics seem to be the wave of the future for treating mental illnesses and especially for people like myself who are treatment resistant. I’ve even tried “shrooms” in a pill form, but couldn’t tolerate the hallucinations it caused, although my Psychiatrist is also currently working on many new studies and its amazing effects on Treatment Resistant Depression as we speak.
I’ve tried so many different treatments over the past seven years and how I see it, I have failed them all, many of which have cost a shitload of money because they were not covered by either Ohip or insurance, Ketamine now included. I wish I could understand why if there is such a need for these treatments and Ketamine for one has one of the highest success rates among all treatments including anti-depressants then why has it not yet become part of the mainstream health care system so that more people can have access to it? I know, dumb question.
It’s an expensive treatment, especially if it becomes ongoing. It’s an expense we really can’t afford at the moment and just adds to the extraordinary guilt I already live with on a daily basis. The “what if” I’m not part of that 60% success rate, the “what if” yet another attempt fails and we throw away even more money that we don’t have. How can I live with that on my conscience?
The answer is, I can’t.
I’ve carried on and on AND on the last few days with all the other reasons as to why I also shouldn’t do it as well and feel like a burden yet again to my family by having to take me and sit with me for 2 to 3 hours (plus the 30 plus minute drive there and back) while I have my treatments.
These are very real struggles for me which of course my Psychiatrist tried to remind me the other day as I rambled on about all my reservations that I’m having that it’s my Depression talking and that my Anxiety is happily cheering him on. I can’t let them win.
But it’s so fucking hard though and the noises in my head are loud as hell. It’s literally killing me.
They keep telling me I don’t deserve to live a life free of chronic Depression, debilitating Anxiety and daily thoughts of Suicide. They keep telling me I’m just gonna fail at this attempt too. They keep telling me to give it up already and that I’ve already used up my many chances at recovery over and over AGAIN. Like why would this time be any different?
Thanks for listening to me today. I so appreciate the extra set of ears. Somedays the best medicine is just knowing that someone is there listening to my very real and terrifying emotions with only the purest of intent.
Today is the last day of September and today is also the last day of “National Suicide Prevention Awareness Month” which is a month long campaign used to raise awareness on this very stigmatized and still very taboo topic.
Although it may only be a month long campaign it doesn’t mean that it ends today. The conversation needs to continue each and every day.
We MUST continue to keep the conversation going.
We MUST continue to give hope to everyone affected by Suicide.
We MUST continue to educate others.
And we MUST ensure that ALL individuals, families and friends have the same accessibility to the necessary resources available to give us all a better understanding on how to prevent suicide and seek help.
I’m not okay.
I’m still having very intrusive and very real thoughts of suicide. It consumes me.
I’m reminded each and every day by friends, loved ones, acquaintances and even strangers what life would be like for those I’d leave behind.
Trust me, I hear you. Your words echo in my head day and night. But sadly for many people suffering with a mental illness or suicidal ideations their pain can still become too much to bare.
One of those many reminders came to me recently by an old friend of mine who reached out to me to chat and I haven’t been able to get our conversation off my mind.
I was so honoured and grateful that she chose to share her overwhelming and very raw emotions with me as she tries to come to terms with the heart-wrenching grief and despair she’s been living with for months now after losing a loved one to suicide.
I could feel her disbelief, her numbness, her shock, her anger, her confusion, her rejection and her guilt all wrapped together as she desperately tries to begin her journey toward healing and acceptance.
The aftermath of losing a loved one to suicide and finding ways to cope with the sadness, the feelings of helplessness and the overwhelming consumption of what ifs or what more could I have done can be very triggering and both mentally and physically exhausting.
Just know that you are not alone.
Surround yourself with people who want to listen when you need to talk or who offer a shoulder to lean on when you just need to sit in silence.
Remember there is no “proper” way to grieve any loss, especially ones which are so sudden and without closure. Let healing happen at your own pace and in your own time.
Seek out others who may be experiencing similar grief. Sharing your story with people who truly understand your pain can often help bring strength to your healing process.
And lastly, find a mental health professional to guide you through your grief and help you adjust to life after suicide.
Yes, today may be the last day of September and the last day of “National Suicide Prevention Awareness Month” but today can not be the end to the conversation surrounding the many complexities of suicide.
Lets all make a promise to band together with more compassion and support to those who wake up each and every day battling very intrusive and very real thoughts of suicide, show kindness and empathy to those who are left behind after a suicide occurs and help them in any way you can to honour the memory of their loved one who has lost their battle.
*visit the Mayo Clinic website for more information.
My Psychiatrist prescribed me an anti-anxiety medication last week as part of my new treatment plan. It’s been several years now since I’ve taken any kind of prescription medication at all to help treat my illness but I agreed to try this in hopes of finding even the slightest bit of relief because asides from my symptoms of depression and suicidal ideations becoming increasingly more and more active and beyond my control over the past month, so too has my anxiety and panic (do you know what it feels like to want to climb out of your skin?).
I began taking them on Saturday morning.
My doctor had told me during our Zoom call a couple of days earlier that I’d need to take one pill every morning and one pill before bed every night and to then increase the doses to two pills in the morning and two pills before bed after a few days. But just to be clear here, it was actually Rich he was giving the information to, not me, as Rich has been under strict instructions from any and all of my doctors to keep all of my medications out of my reach (like that of a toddler) ever since I began to abuse my use of prescription drugs several years ago.
I thought I was okay with all this because this medication was not considered an antidepressant as I have made it super clear to every new Psychiatrist I’ve encountered over the past many years, whether it be in a hospital setting or in a Doctor’s office that I no longer wish to be prescribed any more antidepressant drugs, EVER, after experiencing the excruciating side effects they had caused both my body and mind over a period of several years of trial and error which ultimately led to my diagnosis of Treatment Resistant Depression.
So I thought I was okay with all this.
But by Sunday morning when I awoke to another pill sitting by my bedside table which Rich had left there for me to take, I suddenly realized that I was not okay with it and by Sunday evening those feelings turned to rage as I went frantically searching throughout the house for his hiding spot in hysteria (he had stepped out of the house for a half an hour and I saw it as my golden opportunity).
To be honest though, I’m not really even sure what I was trying to accomplish had I found my stash of pills (including sleeping pills which I was also prescribed and has actually been helping me to get some sleep) but I became inconsolable and in that very moment all I could think of was finding the pills so that I could finally unburden Rich of me once and for all.
I didn’t find them.
It’s now 1:30 AM Tuesday morning as I write this. I could be fast asleep by now had I already taken my new sleeping pill that is sitting by my bedside table but instead I’m lying here in tears, scared and feeling like I don’t want to continue with our agreed upon plan, none of it.
I’ve been laying here in the dark for hours just staring at the pills which Rich left by my bedside table deciding whether or not to take them. And the demons in my head are dancing around claiming their victory (kinda like the Liberal party in Canada is doing right now as well).
I did eventually shut down the demons bantering just long enough to take them. But I’m not okay with all this, even if I know in my heart it is for my own safety and for the good of my health.
I have spent the better part of the past few days since my visit to emerg trying to process everything while still desperately figuring out whether or not I even have the strength anymore to keep going.
The Psychiatrist who was assigned to my care the other day was a very special and very rare find as far as any encounter I’ve ever had with a Psychiatrist in an emergency room before. He went above and beyond anything I have ever experienced during a visit to emerg and trust me when I say I’ve had my fair share of experiences.
You see, it’s very difficult to advocate for yourself when you don’t believe that you are worthy enough or deserving of.
Knowing how overwhelmed I was feeling and knowing how hard it is for me to even complete the simplest of tasks (scheduling appointments being one of them), Rich took it upon himself to help jump start the process of self-advocacy the very next morning, starting with making a follow up call to my GP’s office on my behalf, hoping that she could somehow escalate an appointment quicker to see my Psychiatrist.
That’s when he learned that the referral he’d requested 3 weeks earlier in order for me to make an appointment with my Psychiatrist because I hadn’t seen him in over a year had never been sent out.
She had been on vacation that week but Rich was assured it would be sent as soon as she was back in the office the following week.
Upon learning the disappointing news that it had never been sent out, Rich was assured again the other day that it would be taken care of right away. He waited a few hours to give my doctor’s office some time to fax it over and then he called the office of my Psychiatrist to make me that appointment. They still hadn’t received the referral and still would not make the appointment without it even though I was already his patient but just hadn’t seen him since last year when the new treatment I was scheduled to begin the week of March 15th 2020 was abruptly cancelled due to ya know, a Pandemic!
Feeling frustrated and desperate and very impatient by now, Rich said screw this bullshit and sent an email directly to my Psychiatrist himself to explain what’s been going on.
Within a few hours of sending him the email my Psychiatrist answered Rich’s pleas and copied his two assistants on the email asking that they schedule me in for an appointment to speak with him after hours the very next day on Zoom.
So late yesterday afternoon, feeling emotionally drained from the past few days and hungry from fasting all day being that it was Yom Kippur I finally reconnected with my Psychiatrist. A true gem and another rare find.
We spoke for the better part of an hour where along with Rich’s input a new plan was put into place immediately including a plan to pick up where we had left off last year and have his assistants schedule a first appointment at one of his other clinics to begin the treatment I was to start in March of 2020.
There have been many changes to the treatment’s protocols and the actual administration of it as well and not just due to Covid but several other factors that have come into consideration since then while conducting many clinical trials. The treatment itself has also evolved as well due to more and more research and scientific discoveries.
I’m still really overwhelmed and mentally exhausted right now to say the least and filled with so many mixed emotions today.
I’m so appreciative and grateful though for all the incredible support I have in my life (especially you Rich 💚), even if I may not feel worthy enough or deserving of it.
Not everyone around you will understand your journey and maybe not everyone is truly capable.
I’ve had to accept this within my own personal journey.
It’s destroyed many close relationships of mine.
But I know that my willingness to share my most vulnerable and intimate thoughts and feelings with all of you has helped bring about awareness to the many others who do want to understand what it’s like to live with Chronic and Treatment Resistant Depression, a debilitating Anxiety Disorder and Suicidal Ideations Every. Single. Day.
And I also know that by sharing my journey so openly and honestly has helped many more people feel less alone or ashamed.
So then why do I suddenly feel like I should stop writing? Stop sharing my most intimate thoughts and emotions? Why at one of the most vulnerable points of my journey do I want to stop sharing my story all together?
Because well, it’s not like I Cancer you know.
These were the words that I heard recently directed towards me during a conversation. Words that may not have necessarily been intended to be said with malice but words that can never be erased nonetheless. Words that dismissed the seriousness of my illness. Words that made me feel as though my need to create healthy boundaries and do what’s best for me are basically selfish because well you know, it’s not like I have Cancer.
Not everyone around you will understand your journey and maybe not everyone is truly capable. I’ve accepted this.
But I can no longer keep apologizing because of my “invisible” illness just because it can’t be detected through a body scan or an xray or a blood test and to be perfectly honest I’m just too damn tired to keep having to “defend” myself because I may not “look” sick.
Depression is NOT a choice. Depression just is, just like Cancer or Diabetes just is. They can’t be rated on a scale of any kind and quite frankly they NEVER EVER should be. They are all just truly horrible illnesses and should be treated as such.
I feel like I’ve been punched in the stomach and that my purpose in life to raise awareness, educate and bring comfort to others has been overcome by even more pain and guilt and shame.
I know I should just “let it go” and try and focus on the many lives I do touch and those who appreciate me for who I am and what I have to offer but sadly, having the ability to just “think positive” when living with Depression or Anxiety is one of the biggest obstacles we face.
I’ve been inconsolable for days now and have been left feeling like what’s the point of writing, sharing my journey or living life?
September can be a very stressful month for many. It often means saying goodbye to the mindset of carefree summer days.
Add in so many uncertainties surrounding the Pandemic into the mix and this September could likely be even more challenging for many more.
If you feel more stress in September, YOU are not alone.
With the kids heading back to school, changes in routine, jam packed schedules, many unknowns, a change of seasons, shortening daylight hours; anxiety and overwhelm are certain to play a big role in many of our lives during the month ahead.
September is also “National Self-Care Awareness Month”.
Self-care knows no boundaries, unfortunately neither do anxiety and overwhelm.
Everyone can benefit from practicing self-care. It’s not SELFISH!
So take advantage of it in the month ahead and make self-care an important part of your daily routine.
Pay attention to how you are feeling.
Communication is key.
Healthy boundaries are imperative.
Practice being kind to yourself and tell your guilt to fuck off.
How do you prepare for Stresstember?
How do you ease back into a routine?
What is one thing you look most forward to in September?
***Leave your emojis in the comments as to how you are feeling about the month ahead.
Do you ever feel like you’ve had “one of those days?”
I’m pretty sure you know what I mean right?
We’ve all experienced those days where no matter what, nothing seems to go your way.
Your day may start off seemingly “normal” but then something unexpected or presumably unwarranted happens which leads to a chain of events that quickly spirals into “one of those days”.
I kinda feel like I’ve been living “one of those days” for seven years now though and this week was no exception.
We can’t control everything that happens to us but on many of “those days” I keep trying my best to find a way to survive them.
I posted a pic yesterday on social media which many of you reading this may have seen. It captured the essence of a picture perfect afternoon I’d spent with a couple of friends boating at the lake and smiling through Depression.
What it didn’t show was how I almost didn’t go.
Like one of my friends was literally sitting in my driveway all ready to pick me up to head up north to visit our friend’s lake house for that picture perfect day on the water and I was frozen in panic.
All because of the chain of events which had started early morning the day before and continued into the wee hours the next morning when Maggie suddenly became ill in the middle of the night; just adding insult to injury.
It had been “one of those days” where nothing felt right. I’d just spent the previous 24 hours angry, panicked and crying and it was now trickling into the next day for me.
But I chose to go. I went knowing that if I stayed home I would be giving up even more control of my emotions which is something I absolutely hate feeling more than anything. That feeling leaves my judgment very clouded.
I knew I couldn’t change the events of the day before and that by going I was both acknowledging and accepting that.
I also knew that it would be good for me to go and try to get out of my head, even for just a few hours. I needed to go in order to prove to myself that I can be in control of some of my emotions and that I actually have the power to do so.
What do you try and do to take control of your emotions when you are having “one of those days”?
Today marks the 7 year anniversary of Robin Williams’ suicide.
I often still find myself recalling the events that were taking place that very same evening for me. Over and over again in my mind I replay the image of me sitting alone in my car, completely distraught and contemplating my own suicide just moments before the tragic news of his death even broke.
I have since written many blogs about the impact his death had on me and on society as a whole. I have used the impact his suicide had on the world as an opportunity to educate others on the stigma surrounding suicide, the mask that many people often wear who suffer with a mental illness as well as the importance of our words and language when it pertains to suicide.
I wanted to reshare one of those blogs here with you today (see below). Feel free to search for other “Robin Williams” tributes right here in the search engine of my blog site as well.