Many of you probably saw the pics I posted last night.
Our whole family out for dinner celebrating Rachel’s 19th birthday; the first time in a very long time.
Everyone smiling, laughing, eating, drinking, taking selfies and being present in the moment.
But the pictures didn’t capture everything. They just caught a glimpse of it.
What they didn’t capture was the very real and very painful reality of my illness. The reality and pain that follows me wherever I go no matter what the occasion is, especially lately.
My illness loves to suck the joy out of any occasion to be honest, even the happiest of ones.
By mid afternoon yesterday I could feel my anxiety becoming more and more intense and my sadness building deeper and deeper.
There was no reason for it really. None. Nada. Nil. Zilch. But my illness will tell you otherwise.
By the time we got to the restaurant and settled down at our table I had reached my breaking point. I was so completely overwhelmed with emotion.
Rich could see the build up happening from across the table but it was too late.
Just looking at the menu became incredibly burdensome.
There was nowhere for me to hide.
I did everything in my power to stop it from escalating into a full blown panic attack. I took several deep breaths. I reminded myself that everything was okay, that everyone was okay. I looked around the table and heard the sound of laughter. I noticed the biggest smile on my birthday girl’s face.
But none of that seemed to matter because moments later the panic erupted and before I knew it I was inconsolable. All eyes were suddenly on me.
My kids were left wishing they could somehow crawl under the table. I was left feeling like the worst mother in the world.
There was no reason for any of it really. None. Nada. Nil. Zilch. But for some reason my illness felt otherwise.
My Psychiatrist prescribed me an anti-anxiety medication last week as part of my new treatment plan. It’s been several years now since I’ve taken any kind of prescription medication at all to help treat my illness but I agreed to try this in hopes of finding even the slightest bit of relief because asides from my symptoms of depression and suicidal ideations becoming increasingly more and more active and beyond my control over the past month, so too has my anxiety and panic (do you know what it feels like to want to climb out of your skin?).
I began taking them on Saturday morning.
My doctor had told me during our Zoom call a couple of days earlier that I’d need to take one pill every morning and one pill before bed every night and to then increase the doses to two pills in the morning and two pills before bed after a few days. But just to be clear here, it was actually Rich he was giving the information to, not me, as Rich has been under strict instructions from any and all of my doctors to keep all of my medications out of my reach (like that of a toddler) ever since I began to abuse my use of prescription drugs several years ago.
I thought I was okay with all this because this medication was not considered an antidepressant as I have made it super clear to every new Psychiatrist I’ve encountered over the past many years, whether it be in a hospital setting or in a Doctor’s office that I no longer wish to be prescribed any more antidepressant drugs, EVER, after experiencing the excruciating side effects they had caused both my body and mind over a period of several years of trial and error which ultimately led to my diagnosis of Treatment Resistant Depression.
So I thought I was okay with all this.
But by Sunday morning when I awoke to another pill sitting by my bedside table which Rich had left there for me to take, I suddenly realized that I was not okay with it and by Sunday evening those feelings turned to rage as I went frantically searching throughout the house for his hiding spot in hysteria (he had stepped out of the house for a half an hour and I saw it as my golden opportunity).
To be honest though, I’m not really even sure what I was trying to accomplish had I found my stash of pills (including sleeping pills which I was also prescribed and has actually been helping me to get some sleep) but I became inconsolable and in that very moment all I could think of was finding the pills so that I could finally unburden Rich of me once and for all.
I didn’t find them.
It’s now 1:30 AM Tuesday morning as I write this. I could be fast asleep by now had I already taken my new sleeping pill that is sitting by my bedside table but instead I’m lying here in tears, scared and feeling like I don’t want to continue with our agreed upon plan, none of it.
I’ve been laying here in the dark for hours just staring at the pills which Rich left by my bedside table deciding whether or not to take them. And the demons in my head are dancing around claiming their victory (kinda like the Liberal party in Canada is doing right now as well).
I did eventually shut down the demons bantering just long enough to take them. But I’m not okay with all this, even if I know in my heart it is for my own safety and for the good of my health.
I have spent the better part of the past few days since my visit to emerg trying to process everything while still desperately figuring out whether or not I even have the strength anymore to keep going.
The Psychiatrist who was assigned to my care the other day was a very special and very rare find as far as any encounter I’ve ever had with a Psychiatrist in an emergency room before. He went above and beyond anything I have ever experienced during a visit to emerg and trust me when I say I’ve had my fair share of experiences.
You see, it’s very difficult to advocate for yourself when you don’t believe that you are worthy enough or deserving of.
Knowing how overwhelmed I was feeling and knowing how hard it is for me to even complete the simplest of tasks (scheduling appointments being one of them), Rich took it upon himself to help jump start the process of self-advocacy the very next morning, starting with making a follow up call to my GP’s office on my behalf, hoping that she could somehow escalate an appointment quicker to see my Psychiatrist.
That’s when he learned that the referral he’d requested 3 weeks earlier in order for me to make an appointment with my Psychiatrist because I hadn’t seen him in over a year had never been sent out.
She had been on vacation that week but Rich was assured it would be sent as soon as she was back in the office the following week.
Upon learning the disappointing news that it had never been sent out, Rich was assured again the other day that it would be taken care of right away. He waited a few hours to give my doctor’s office some time to fax it over and then he called the office of my Psychiatrist to make me that appointment. They still hadn’t received the referral and still would not make the appointment without it even though I was already his patient but just hadn’t seen him since last year when the new treatment I was scheduled to begin the week of March 15th 2020 was abruptly cancelled due to ya know, a Pandemic!
Feeling frustrated and desperate and very impatient by now, Rich said screw this bullshit and sent an email directly to my Psychiatrist himself to explain what’s been going on.
Within a few hours of sending him the email my Psychiatrist answered Rich’s pleas and copied his two assistants on the email asking that they schedule me in for an appointment to speak with him after hours the very next day on Zoom.
So late yesterday afternoon, feeling emotionally drained from the past few days and hungry from fasting all day being that it was Yom Kippur I finally reconnected with my Psychiatrist. A true gem and another rare find.
We spoke for the better part of an hour where along with Rich’s input a new plan was put into place immediately including a plan to pick up where we had left off last year and have his assistants schedule a first appointment at one of his other clinics to begin the treatment I was to start in March of 2020.
There have been many changes to the treatment’s protocols and the actual administration of it as well and not just due to Covid but several other factors that have come into consideration since then while conducting many clinical trials. The treatment itself has also evolved as well due to more and more research and scientific discoveries.
I’m still really overwhelmed and mentally exhausted right now to say the least and filled with so many mixed emotions today.
I’m so appreciative and grateful though for all the incredible support I have in my life (especially you Rich 💚), even if I may not feel worthy enough or deserving of it.
To chronicle my sleep patterns in a word I’d best describe it as haphazardly.
In short, it lacks any type of direction, it’s random and very disorderly.
I’m up until all hours of the night wandering aimlessly, worrying and anticipating doom.
My body seems to have made the necessary adjustments needed for someone living on minimal amounts of sleep each night but still it continues to urge me to get some rest when I can.
Most days it loses that argument because even a short catnap feels burdensome to me. My mind fights the urge to nap but certainly not for lack of trying that is.
Napping is good for your mental health. Experts will tell you that taking a short afternoon nap can help clear the chaotic thoughts and burnout from your mind, it can improve your cognitive ability and even boost your mental agility.
But still, napping gets a bad rap.
People perceive napping as laziness instead of seeing it for its many health benefits.
I wish I could nap more often. I feel guilty as it is when I can’t get out of bed most mornings. But it’s okay to nap, or even lay in bed a little bit longer if that’s what your body and mind need.
Sometimes doing nothing is the best thing we can do in order to recharge. It’s not a waste of time if your body and mind are begging you to do so.
Do you find having a quick catnap when you can rejuvenating?
Thank you to everyone who continues to reach out to me, check up on me and leave beautiful messages of support this week as I continue to try and get through this very difficult time*
If I’m being honest, it probably crosses my mind at least once per day, but most days I am able to distract it or change the subject.
But then there are the days or even weeks when it decides it wants to fight back.
It gets angry.
It uses scare tactics.
It bullies me.
And oftentimes it has pressured me into doing things I don’t want to do.
For the better part of a week now I’ve been finding it more and more difficult to distract it. I do so for a while and try my darndest to change the subject but that only seems to be making it fight back even harder, and it seems angry.
Which makes me even more vulnerable.
The best way to describe what this feeling is like would be to compare its likeness to that of the antagonist in a horror film chasing after the heroic protagonist through the dark and foggy woods with a bloody butcher’s knife in hand.
You feel an adrenaline rush. You feel scared and alone.
You can barely catch your breathe.
You try running faster as you look back into the dark and fog filled woods. You can hear the rustling of leaves and you know that the antagonist is gaining speed. Then suddenly you lose your footing and collapse from exhaustion. You feel like you can’t run anymore.
*** I am needing to take a short break from social media. I’m at my breaking point. I have such an amazing community of support surrounding me which will never go unnoticed. I love and appreciate you all! xoxo
*if you or someone you know is in crisis please tell someone immediately*
Two years ago today, August 16th, 2019 was one of the happiest and most fulfilling days of my life when the first ever copies of my brand new, hot off the press children’s book “Where Did Mommy’s Smile Go?” arrived on my front porch.
I had just spent the previous year and a half working on it from start to finish which included writing, editing, working with my fabulous illustrator and finding the “perfect” and most patient company to help me self-publish it.
For the next four plus months I worked non stop trying to get my book into as many hands as possible. I attended one event after another, reached out to Mental Health Advocates on Social Media, got it on the shelves of some independent bookstores in Toronto, sold it at large retail chains, made several National Television and Radio appearances, was interviewed by local Newspapers, gave book talks at Preschooler/Mommy & Me programs and I had just begun filling up my calendar for the new year with book talks on Mental Health at Elementary Schools as well.
And I had endless possibilities still up my sleeve.
I met so many incredible people along the way. I also had such incredible support from so many fantastic friends, family, acquaintances and strangers alike.
It felt like my dreams were coming true. I felt like I had purpose and I even felt like royalty somedays, especially when I attended my fabulous book launch party that Fall in my honour, hosted by a friend and her husband.
And then, BOOM💥, 2020 hit and it hit hard. I got a concussion on day two of the new year which put me out of commission for close to a month and then the Pandemic hit us all in March and then in June of 2020 I found out, just by dumb luck that my Publisher had closed his business after 35 years, without any warning to his clients or a simple courtesy email or thank you. Instead he disappeared without a trace and took with him, several thousands of dollars of Grant money which had been gifted to me by a prominent Mental Health Organization along with any additional inventory of mine they had held on to for safe keeping for my personal use and my Amazon account.
To say I felt defeated is an understatement. One obstacle after another left me feeling purposeless again and very broken. It was the final blow. My dreams felt crushed.
I wanted to give up completely. I didn’t see any point in continuing.
How was I ever going to move forward from this especially knowing I now needed to somehow find a way to republish my book. We were in the midst of a global Pandemic and money was extremely tight.
But how could I give up on my dream that I’d worked so hard for and wanted more than anything? How could I let anyone dull my sparkle?
Surrendering to my current situation was difficult to accept. The “what ifs” controlled my every waking moment, making it even more difficult to forgive myself and somehow find the strength to move forward.
I took some time to figure out if I could somehow save my dream even though it felt too crushed to repair.
I leaned on my support system for encouragement and reassurement even more. I didn’t want to give up on my dream even if it felt crushed beyond repair and that my anxiety and depression had taken over my ability to pivot my way through this, especially during a global Pandemic.
I began slowly trying to rebuild my dream by learning how to use technology I’d never even knew existed before in order to keep my book relevant. I knew that with each passing month of the Pandemic there were more and more people in need of my voice and my book.
I kept reminding myself this was not my fault.
I am still actively looking to republish my book when I am ready and able to and this time I plan to take everything I have learned through this process into account when choosing a new publisher to work with. I am wiser now.
I am also so grateful to still have copies of my book in my possession which has allowed me to continue promoting it in the meantime. And of course with the help of technology and social media I’ve found so many new and innovative ways of doing so during a Pandemic through guest spots on Podcasts, Book Talks and Conferences on Zoom, pre-recorded story times, Google meet-ups with Non-Profit Organizations and Facebook/Instagram lives.
These obstacles I’ve endured since January 2020 have taught me many important lessons. My dream has never changed. My vision hasn’t either.
It may feel crushed beyond repair but like so many of us have had to do over the last 17 months, I am learning to pivot. Pivots in life do not equate to failure. Pivoting simply allows new doors to open and new dreams to come true.
We took a rest today from any strenuous hiking after our grueling 3 hour hike yesterday where Rich injured his knee, most likely when he went tumbling down the side of a cliff.
His injury from the fall further intensified any pain and tenderness he’s endured in his one knee for like forever; I’m talking long before the #summerofrich ever began.
For years now he’s complained to me about muscle strain in his knee but no matter how much I’ve tried, has refused to speak with his doctor about it or at the very least try wearing a knee brace while hiking or doing any other strenuous activity.
But today he finally relented and took his knee brace for a test drive and a leisurely stroll with Maggie as well.
I’m not quite sure if I’ve ever told you this before, but Rich is the most stubborn person I know!! However, being stubborn isn’t always such a bad thing because stubborn people are often known to embody “strongly-felt” emotions and care more deeply for others; characteristics of Rich’s I wouldn’t change for the world.
But the truth is that even though I may have recovered initially from my battle with Anorexia and Bulimia in my early 20’s it has never truly left me; it’s just transformed itself in other ways.
I never battled with my weight before the onset of my eating disorder, nor did I have any issues with my self-image.
It probably didn’t truly present itself again until I began having children in my late 20’s and early 30’s and it has especially spiraled out of control since my battle with Depression and Anxiety began seven years ago.
Right from the start of my mental health journey and my diagnosis I was treated with over 20 concoctions of antidepressants for a solid two years straight which eventually led me to a further diagnosis of Treatment Resistant Depression and also left me with a weight gain of close to 100 pounds.
And although half of that weight gain almost disappeared instantly when my husband and I finally made the decision together, along with the guidance of my Psychiatrist to wean me off all my medications, my weight has continued to be an uphill battle for me throughout my journey and just one of the many road blocks in my recovery. It all too often leads me back to those same destructive behaviours I exhibited as my 18 year old self battling an eating disorder.
I’m struggling alot these days with these tendencies and it seems to have magnified itself by a thousand this past week when I needed to go dress shopping for an upcoming family wedding and I had a panic attack and complete breakdown which left me crying in a sea of dresses on the floor of a department store changeroom.
I know I’m not alone in my negative self-image or body-shaming thoughts and especially lately as we all begin to emerge from our cocoon that has left many of us bearing several extra “Pandemic Pounds”.
It’s no secret by now from all the pictures that I post how much I shy away from the camera. Seeing pictures of myself only sets off a destructive mindset and binge of body-shaming.
It’s a vicious cycle of bullying, negative self-talk, anxiety and suicidal ideations. Self-shaming or the act of body-shaming whether it be towards ourselves or someone else is a real and very dangerous problem which Social Media and the mainstream media have only made 10x worse.
My illness has pretty much destroyed any ounce of self-confidence I once had, it continues to tell me how worthless and helpless I am, it loves to focus on the negative and boy oh boy does it ever hate to hear compliments.
I wish I were able to squash my destructive mindset once and for all and begin to see the same beauty in me that others do; and to believe that I AM ENOUGH from the inside out.
You must be logged in to post a comment.