I received an email today about the MRI I’ve been waiting on for a few months now —the next step in this exhausting Neurofibromatosis journey. I opened it, my eyes immediately going straight to the highlighted appointment date. And when I read it, I didn’t know whether to throw my phone (Rich and I were out running errands), cry, or just laugh. Instead, I crumbled.
What hurts the most? I’m not even surprised anymore. I’ve reached a point where disappointment feels normal. Expected. Where being pushed aside feels routine. Where I’ve learned to brace myself every time I try to get the care I need.
And here I am again – emotional, scared, angry, fed up, worn down. I’m so damn frustrated having to fight for the care I deserve. I’m tired of being “strong” because I have no other choice. I’m exhausted watching the very system that’s supposed to help me make everything heavier, harder, and lonelier.
Our healthcare system has failed me so many times over nearly twelve years. It’s not just broken—it’s a harsh reminder of how deeply fucked up it truly is, and how people like me are left to deal with the fallout.
#healthcaresystem #mri #Neurofibromatosis #exhausted #angry #failure #scared #broken #mentalhealth #youarenotalone
YouAreEnough 